Title : Changed Lives by Changing Lives of Children with Congenital Anomaly
Congenital anomaly is a condition affecting 1 in 33 infants every year. Having a baby born with anomaly does not only affect the patient himself but more so the people surrounding the patient which is his family. The aim of the study is to explore the experiences of the families that act as a primary caregiver to children with any type of congenital anomaly in order to enhance the quality of care provided by the health care system to the patient affected by the condition and also to give much holistic attention to the families who give care to the patient. A phenomenological-heuristic type of research design was used in the study. Six informants willingly participated in the study under an informal, semi-structured interview with the main question “What is it like to care for a child with congenital anomaly?” The study revealed 7 main themes: Dealing with Tough Life, Sustaining your Child’s Needs, United in Times of Crisis, Slaves of Our Emotions, God Challenging Your Conviction, Side Effects of having a Family Member with Congenital Anomaly and Dealing with their Child’s Special Need.