Title: User centre design to develop an exercise-based lung cancer self-management platform
Abstract:
Lung cancer continues to represent a substantial global health challenge, characterised by high mortality rates and an increasing incidence of new cases. Despite advances in treatment options, survival rates for lung cancer remain significantly lower than those of other cancers. Research has consistently demonstrated that increased physical activity can provide notable benefits for individuals living with lung cancer, such as reducing symptoms of breathlessness, fatigue, and depression, in addition to improving overall well-being. The aim of the study was to develop a novel digital self-management platform, “HandHeld Health – Lung Cancer.” This exercise-based tool was specifically designed to empower individuals diagnosed with lung cancer to take a more active role in managing their health. The platform delivers personalised exercise recommendations, enables users to monitor their symptoms and track their progress, and provides guidance by directing them to relevant supportive resources. The development process was underpinned by extensive patient and public involvement, which was integrated at every stage of the research process to ensure that the platform aligned with the real-world needs of users. Additionally, the research adopted an agile methodology to facilitate iterative development. This approach allowed for a co-design process that engaged lung cancer patients, survivors, caregivers, healthcare professionals, and key decision-makers. The iterative nature of this co-design framework ensured that feedback was continuously incorporated to refine the platform in line with user expectations. The collaborative, user-centred development strategy aimed to address the current gap in self-management resources for lung cancer patients. By enhancing patient engagement and promoting physical activity, the “HandHeld Health – Lung Cancer” platform can improve physical functioning and enhance the quality of life for those affected by lung cancer
Biography:
Suriya is an internationally qualified registered nurse and midwife who began her career in South Africa. With over three decades of nursing experience and a background in psychology, she has dedicated her professional life to enhancing patient outcomes across diverse clinical settings, including intensive care, acute medicine, stroke, and cancer care. Her extensive expertise in cancer care is particularly notable, encompassing roles such as Acute Oncology Specialist Nurse, Advanced Cancer Research Practitioner and Genomics Practitioner. Suriya led the delivery of cancer research for over 16 years at North Bristol Trust, where she played a pivotal role in shaping the cancer research portfolio to benefit patients and advance care delivery. She is currently pursuing a PhD in lung cancer, focusing on developing a digital self-management platform for individuals living with the disease. Her research bridges clinical expertise, leadership, and innovation to drive improvements in patient care and experiences. Suriya’s commitment to leadership and innovation in nursing is exemplified by her recognition as a Florence Nightingale Foundation Established Leadership Scholar. She also holds influential leadership roles, nationally and internationally. Suriya serves as Chair of Lung Cancer Nursing UK’s Research Interest Group, is a core member of the UK Oncology Nursing Society’s Personalised Cancer Care Members Interest Group, sits on the advisory committee of the Global Power for Oncology Nursing Group and various research advisory committees. More recently, Suriya was accepted on the National Institute for Health and Care Senior Research Leaders Programme. In her new role as Assistant Chief Nursing Officer for Research Development and Genomics, Suriya aligns her work with the Chief Nursing Officer for England’s strategic research priorities and NHS England’s vision for integrating genomics into healthcare. Equity, diversity, and inclusivity are at the heart of Suriya’s research and leadership approach. She is committed to empowering the nursing community by supporting the development of fundable research proposals and nurturing the ambitions of her colleagues.
