Title: Development of canparenting app to empower parents of children with cancer- A user centred approach
Abstract:
Background: Childhood cancer is a life-altering diagnosis that affects not only the child but the entire family. In 2022, nearly 275,713 new cases were reported globally among children and adolescents, with over 35,000 in India alone. For parents, navigating their child's treatment journey is often overwhelming, filled with confusion, fear, and emotional distress. Many struggle with a lack of information and confidence in managing their child's complex care needs at home. Recognising this gap, there is an urgent need for accessible and supportive tools to guide and empower families through this challenging time.
Objective: This study was conducted with the objective of developing and validating a mobile App to support parents of children with cancer.
Methods: The App was developed using a user-centred design approach, shaped by expert input and discussion with parents. Content was developed in both Hindi and English, validated by 13 multidisciplinary experts, and tested with parents to ensure relevance and ease of use. Their suggestions helped refine the App before its release on the Google Play Store.
Results: Expert validation showed 98.46% agreement that the content fully met the criteria. Parents found the App easy to navigate, informative, and helpful especially features like symptom management guidance, health charts, and caregiving videos. Over 81% reported high levels of satisfaction.
Conclusion: The Canparenting App offers a compassionate, practical tool for parents, helping them feel more informed, confident, and supported while caring for their child with cancer, especially in resource-constrained settings.
